Strategy
and Policy
In 2000 it was decided to transform the EAGS into a European
Genetic Alliance with a limited focus and a strong output
in terms of projects and direct or indirect influence in the
scientific, industrial and political arena.
For these reasons relationships, collaborations and partnerships
were established with scientific societies and industrial
associations while contacts with officials of the various
EU/DGs were established and intensified.
For the same reasons the Alliance produces
via a democratic procedure statements and position papers.
The Alliance has a focus on medical, ethical,
legal, psycho social and cultural implications of genetics
and biotechnology...
The Alliance will work in addition and together
with the European Patient Forum, the European Organisation
for Rare Disorders and other major umbrella organisations
with interests in the field of research and health policy.
The Alliance believes that the empowerment
of individuals, families and patient groups should strongly
be promoted in order to enable them to make timely and informed
decisions about family planning and life style issues; decisions
which fit in their own situation. This empowerment is also
important, if they wish, to enable them to take a position
on major policy issues such as the use of stemcells and genetherapy.
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